Friday, October 21, 2011

Ben's Friends

Just the Stats:
Communities: 27
Friends: 12,500+

In this issue:
We're writing a book
CMT Awareness Month
Sweepstakes Continue
Monthly Feature

We're writing a book:
... and we need your help. We are writing an electronic book by, for, and about people with rare diseases with a focus on support. We hope this e-book with tell the rich, inspiring, moving stories of our members, and provide tips for 1,000s of people around the world affected by rare diseases.

You can help by clicking on the tab called "Share your Story/Tips" at the top of your community page and following the instructions. Thanks for your help.

CMT Awareness Month:
September was CMT (Charcot Marie Tooth) Awareness Month. It was a month dedicated to spreading awareness and knowledge about CMT, the most commonly inherited peripheral neuropathy.

Our CMT community reached people in 80 different countries with their awareness efforts. We are very proud :)

Sweepstakes Continue:
Congratulations to Susan K. from the community, our first winner in the Facebook sweepstakes contest. She won a premium stationery package from our friends at Sugar Paper.

It's not too late to enter. All you have to do is LIKE us on Facebook. The more likes we have the easier we are to find and the more people we can help. Thanks everyone who has already helped spread the word.

Monthly Feature:
Jackie was diagnosed with Trigeminal Neralgia (TN) in 2006. She has gone through several treatments over the year but has still managed to maintain a great attitude. She has been a great help and support in the community in the last few months so we'd like to say thank you.
You can stop by and say hi to her too.

Become a Moderator for one of our communities by emailing us at

Share your inspirational story with us at

Ben’s Friends Team

TNA | Young Patients Committee Support Group Chat

Young Patients Committee Support Group Chat
This is the first support group chat for TNA's Young Patients Committee (YPC). The chat will introduce the YPC Board members, the mission of the YPC, and a discussion of our plans for the upcoming year. The chat will take place on Saturday, October 29th at 5:00PM EST

Follow the link below to participate or call in at: 646-378-1284
YPC Support Group Chat

408 W. University Ave.
Suite 602
Gainesville, FL 32601
352-384- 3600