 |
Just the Stats:
Communities: 27
Friends: 12,500+ In this issue: We're writing a book CMT Awareness Month Sweepstakes Continue Monthly Feature We're writing a book: ... and we need your help. We are writing an electronic book by, for, and about people with rare diseases with a focus on support. We hope this e-book with tell the rich, inspiring, moving stories of our members, and provide tips for 1,000s of people around the world affected by rare diseases. You can help by clicking on the tab called "Share your Story/Tips" at the top of your community page and following the instructions. Thanks for your help. CMT Awareness Month:  September
was CMT
(Charcot Marie Tooth) Awareness Month. It was a month dedicated to
spreading awareness and knowledge about CMT, the most commonly inherited
peripheral neuropathy.Our CMT community reached people in 80 different countries with their awareness efforts. We are very proud :) Sweepstakes Continue: Congratulations to Susan K. from the AVMsurvivors.org community, our first winner in the Facebook sweepstakes contest. She won a premium stationery package from our friends at Sugar Paper. It's not too late to enter. All you have to do is LIKE us on Facebook. The more likes we have the easier we are to find and the more people we can help. Thanks everyone who has already helped spread the word. Monthly Feature:  Jackie
was diagnosed with Trigeminal
Neralgia (TN) in 2006. She has gone through several treatments over the
year but has still managed to maintain a great attitude. She has been a great
help and support in the livingwithtn.org
community in the last few months so we'd like to say thank you.You can stop by and say hi to her too. Become a Moderator for one of our communities by emailing us at info@bensfriends.org Share your inspirational story with us at stories@bensfriends.org. Regards, Ben’s Friends Team |
CONNECT
WITH US  on
Facebook on
Twitter on
YouTubeOur Communities Acute Disseminated Encephalomyelitis (ADEM) ADHD Adrenoleukodystrophy (ALD) Arteriovenous Malformation (AVM) Ataxia (International) Ataxia (U.S.A.) Atrial Septal Defect Brain Aneurysms Charcot Marie Tooth (CMT) Chiari Malformation Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Crohn's Disease Disabilities Eagle Syndrome Erythromelalgia Fibromyalgia Glossopharyngeal Neuralgia (GPN) Hepatitis C Lupus Multiple Myeloma Myositis Primary Sclerosing Cholangitis (PSC) Psoriatic Arthritis (PsA) Synovial Sarcoma Trigeminal Neuralgia (TN) Von Willebrand's Disease (VWD) Other Rare Diseases What community can we create for you? Let us know at BensFriends.org |
